The group’s name is:
One Voice Sickle Cell and Thalassaemia Support Group (NORTHAMPTONSHIRE).
In Affiliation with London Sickle Cell Society.
B) THE PURPOSES OF THE GROUP ARE :-
TO BE HEARD:
- Included into the community Net Work, i.e. Voluntary Sector, Statutory Sector, Private sector advocacy.
- Forum for Sickle Cell and Thalassaemia, patients to discuss their experiences, other issues and assistance needed.
- To offer financial assistance towards heating, transport, fluids and other dietary needs.
TO OFFER SUPPORT:
- To share advice, to visit home/hospital as required.
- To link with other organisation who would support us.
- To have a support newsletter which would high light how funds are used and activities carried out by the group.
TO OFFER HELP:
- To share information regarding benefit entitlement and to assist in filling forms as required.
- Treatment at home, aid and adaption at a quicker pace.
TO LINK WITH CLINICAL NURSE:
- Monitoring individuals are in contact, clinical nurse and psychologist.
- To insure the clinical nurse and psychologist have input into other agencies ie. schools, surgeries, dentist, police, hospitals, care homes, employment, children’s home, foster carers.
- To identify and explain current treatments, i.e. pain relief, blood transfusion (over load of iron) gas and air explained, investigate in morphine/PCA? cannula, ward admissions, x-ray, c.t (bypass A&E)
- Labelling: To educate those in the front line services to recognise the nature of the pain of Sickle cell & thalassemia patients without negative labelling and sanctions. Group member’s maybe available if required to accompany nurses for awareness sessions.
RESEARCH IN TREATMENT:
- To seek up to date information. No update of research and organ damage.
C) CARRYING OUT THE PURPOSES
In order to carry out the purposes, the Committee has the power (In Affiliation with London Sickle Cell Society) to: -
- Raise funds, receive grants and donations.
- Buy or sell property, take on leases and employ staff.
- Co-operate with and support other groups with similar purposes.
- Do anything else within the law which is necessary to achieve the purposes.
The Committee may admit to membership anybody aged 16 and over who supports the purposes of the group. People who wish to become a member should apply to the Committee. Membership lasts for 1 year and may be renewed. The Committee will keep an up to date membership list.
The Committee may expel someone from membership, provided it is in the best interest of the group to do so, and they are given the right to be heard by the Committee before the decision is made. They can be accompanied by a friend.
E) ANNUAL GENERAL MEETING - AGM
- The AGM must be held every year, with 14 days notice given to all members.
- There must be at least 50% members present at the AGM.
- The Committee shall present the annual report and accounts.
- Any member may put themselves forward for election as a Committee member at the AGM.
- Every member has one vote.
- Members shall elect between 3 and 10 members to the Committee. They will retire at the next AGM and may stand for re-election.
- The Committee shall hold at least 3 meetings each year. They will elect a chair, treasurer and secretary at their first meeting.
- At least 3 Committee members must be at a committee meeting to be able to take decisions. Minutes shall be kept for every meeting.
- The Committee must keep accounts which may be viewed by any member on request.
- During the year, the Committee may appoint up to 2 extra members on to the Committee who will stand down at the next AGM but are eligible for re-election.
- The Committee may make reasonable additional rules for the proper conduct and management of the group. These rules must not conflict with this constitution or the law.
- Funds must be held in the group’s bank account. All cheques must be signed by 2 Committee members.
- Funds cannot be used to pay Committee members except to refund legitimate expenses.
- Funds and property must only be used for the purposes of the group.
H) SPECIAL GENERAL MEETINGS
Special General Meetings may be called by the Committee for the following reasons. All members must be given 14 days notice and told what change is proposed.
- Changing the Constitution - The constitution may be changed by a two thirds majority of members present and voting at a Special General Meeting.
- Emergency Special General Meetings – to allow the members to decide on important issues.
- Winding up – the group may be wound up by a two thirds majority of members present and voting at a Special General Meeting. Any money or property remaining after payment of debts must be given to a group with similar (charitable) purposes.
J) SETTING UP THE GROUP
This constitution was adopted on 14 May 2013